Thank you for wanting to help stop Dutchtype CAA! On the Sign Up page you will find more information about how to register and what happens after you register. Do you have more questions before you sing up? Maybe you will find answers at the frequently asked questions.
We know it can be hard to talk about Dutchtype CAA with family members. People tend to deal with it in very different ways and some don’t even want to hear about out it at all. We understand that, truly. However: a potential treatment helps all of us. And we cannot stress it enough: the time is now. Right now (as of July 2023) we are having active discussions with Alnylam and Regeneron about including DCAA families in a drug trial with ALN-APP.